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Jarrett, Brad and Quinn
Margus - December 2000
Anyone
whose life is touched by ataxia-telangiectasia is changed forever. Whether
the patient diagnosed is your child -- or your niece, nephew, grandchild
or friend -- old assumptions have to be discarded and new realities
accepted. The world is suddenly changed, and the future is most uncertain.
It is time for making adjustments -- physical and psychological -- many of
them agonizingly difficult.
At the A-T Children's Project we understand
how you feel. When two of our sons were diagnosed in 1993 we responded to
our personal experience by forming this organization and making a
commitment to change that uncertain future, aiming at nothing less than a
cure for A-T.
Brad and Vicki Margus
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